Showing posts with label young adult cancer. Show all posts
Showing posts with label young adult cancer. Show all posts

Thursday, August 14, 2014

It's My Party and I'll Cry if I Want To

Tomorrow marks the one year anniversary of my diagnosis with Stage IV gastric cancer.

I've spent the last two weeks trying to figure out how to observe this day. My husband has been encouraging me to do something fun and exciting. A friend of mine who had uterine cancer marked her one year anniversary by climbing a very steep hill in her home town, just because she could.  Some of you reading this must have marked similar anniversaries. What did you do?

It's strange to think of celebrating one year of having cancer. On the other hand, my treatment has gone better than expected and the fact that I am still here is certainly reason to celebrate!  But still, nothing came to mind when asked how I wanted to observe this day. Nothing seemed appropriate. I thought and I thought, talked with some friends, but still, nothing.  I needed a way to both celebrate and grieve at the same time.

While this year has been promising in terms of my treatment, it's also been a year of intense changes and loss. I've lost my old "normal" life. The satisfying day to day routine of my old life is gone. The professional goals I'd set for my self now seem unattainable.  Right after my diagnosis things were unpredictable and surprising. Then came a period of "my new normal", which may have been predictable, but was not the satisfying routine of only a few months before. Now I often describe things as "par for the course". Fatigue, neuropathy, and everything thing else are just the same old same old.

Next week, I have a ct scan. If it shows that things remain stable, I'll take a little break from chemo, probably four to six weeks. This will provide a break from the same old same old. Hopefully my side effects will diminish and it will provide me the opportunity to attempt my old routines without the interruption of treatment and the recovery time that requires.

So tomorrow, my husband and I will have breakfast with one friend, lunch with another, and dinner with still others. It'll be my party, but I'll cry if I want to.

Update: I didn't cry. Instead, I hugged a friend in a penguin suit at Dunkin' Donuts.  

Monday, June 2, 2014

The Pros and CONS of Cancer

     If you know me, this post is going to completely blow my anonymity.  But I'm pretty sure that even without this post, if you read this blog, you'll either ask right away if it's me or tell me I should totally meet the author, because her story is just like mine.  And in case you missed my excited earlier post, I'm going to be on Stupid Cancer's podcast in July, which isn't going to help with the anonymity either.

     When I was a teenager, I had to go to Boston Children's Hospital.  I wore Converse sneakers because it was the early nineties, and like I said, I was a teenager.  Both a doctor and an orderly commented something like, "Nice sneaks".  My dad and I have often reminisced about this.  So when at thirty five I was diagnosed with stomach cancer and the decision was made to go to Dana Farber, I thought, "Well I know how to get special attention at fancy Boston hospitals" and I wore Converse.

     My friend who came with us to that first appointment caught on and we were talking about it in front of my sister, who said, "Well, I'll just wear my Cons on your treatment days" (she already has enough pairs to wear an appropriately different pair each day of Spirit Week at the school where she teaches).  Another friend overheard all this and started a Facebook campaign so that on my first treatment day my homepage was flooded with people wearing Chucks.  Within a few weeks, there were over 100 people wearing Converse sneakers for me on the days I had treatment or tests.  Now, I think it's closer to 200.  These include friends, family, my coworkers, my students, my camp counselor from when I was eight, people from church, and the friends and family of all those listed above.  Complete strangers are wearing Chucks for me. People have posted pictures from South Africa, Costa Rica, Australia, Paris, London, Jerusalem, the press room of the White House as well as the State of the Union address, and the Great Wall of China.  I've put many of these pictures into a book I made on Blurb.  The week after I finished the book, my cousin posted a picture of her snorkeling in Hawaii with her Cons, so I had to start making another book.

     On the day of my second treatment, my oncologist walked in and commented on my Chucks, "Orange today".  So I explained my theory about getting special attention at fancy Boston hospitals.  He replied, "Well its the first thing I noticed about you today and commented on, so it seems perfectly logical to me".

     Sometimes it's overwhelming, all of this love and support, but I know I couldn't do this without them.

Saturday, May 17, 2014

Stupid Stomach Cancer on Stupid Cancer Blogtalk Radio

On Monday, May 19th, 2014 T 8ET, Stupid Cancer will broadcast about Stupid Stomach Cancer.

"There are 22,000 diagnoses of Stomach Cancer each year, which a significant percentage increasing in young adults. Join is as we welcome Debbie Zelman (Founder, Debbie's Dream Foundation) and AYA stomach cancer survivor Jess Mac for an initiative conversation about this oft undiscussed disease." -Stupid Cancer http://www.blogtalkradio.com/stupidcancershow/2014/05/20/stupid-stomach-cancer#.U3czR1Q-NdQ.twitter

I am really looking forward to this and have set all the reminders on my phone and around my house so I won't miss it.

Along the same line, Stupid Cancer retweeted and posted my blog to Facebook. This may be what led many of you here. Then, yesterday, I came home from infusion, tired and nauseous, to see that Matthew Zachery the CEO of Stupid Cancer tweeted me to say they'd love to have me as a guest on their radio show! I almost peed my pants! I'm so excited about this possibility!